KATE: The kids need to talk about it. But sometimes when they talk to their parents, their parents treat them a little differently. I know for myself, my mom definitely babied me a little bit more when she found out what was going on. And that's not what I needed- I needed someone just to understand the disease and just kind of be there; I don't need the babying that goes along with it. And I was older when I was diagnosed, so for a child that's definitely going to be an issue. Children- obviously younger children ten and below probably would need that, but when you start getting older you really need to have the freedom to continue to explore life and do the things your friends are doing, even with your limitations. And understanding your limitations is a challenge, but it's good. Treat them normally; that's what it comes down to. They're still kids. They have limitations with their disease, but treat them as if they don't. That would be my advice, but I'm not a parent dealing with a child in the house; I'm a clinician dealing with the children here. And when you treat them as if they're fine, they seem to respond a little bit better than when you treat them as if they're not. That's what my experience has been so far.