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Resources and Sources of Support |
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The best general book that I have yet read about diabetes is Cheating Destiny by James Hirsch. Hirsch talks about everything from the experience of having diabetes (and a newly diabetic child), to the history of the disease, to the current research in the field. This book was both inspirational and informational, and I wish that someone had handed it to me during those first scary weeks after diagnosis. -Mother Stephanie has gone to the Clara Barton camp in Oxford, MA which was very helpful. Everybody’s on the same page everyday. Everybody has the same routine everyday and they have a lot of helpful resources for you there. -Mother We had a visiting nurse. It was incredibly important to have a nurse come the day after we got home because we still really didn’t know what we were doing. Our nurse was a man who had a daughter with diabetes. So he knew all about it. And he probably came at least three or four times. He sat with us and he explained things and we had great visits with him. Another thing that he did was he came and talked to all our neighbors and friends. We had a night where he invited people to learn about it and he spoke. We also had a nutritionist through the visiting nurses association and she came several times. She really helped us take the food plan that had come home with us from the hospital, which was sort of an emergency plan, and then she helped shaped it to the way that we like to eat. She talked to Billy at length about how the current plan was working and how they should change it so she made a couple changes over time. -Mother I went to some of the Juvenile Diabetes Research Foundation coffees and I was able to meet some other moms and ask some questions. So I thought that was helpful. I thought the VNA was very helpful in the beginning. The more honest I was with my friends about with what was happening, the better--but I was afraid of complaining too much, so I didn’t use that as much as I could have. -Mother
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Hospital Boston Department of Psychiatry. All Rights Reserved. The information on this website should not be taken as medical advice, which can only be given to you by your personal health care professional. Updated: June 8, 2009 |
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