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A life-long condition
Other than the hardship of having to take medication and all, the hardest thing for me is the knowledge that this is permanent. It would be much easier to deal with injections and other problems if there were an end in sight. Knowing that things will likely be this way all of my life is frustrating in the extreme.
-Sarah, 23 years old
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I don't get candy whenever I want
Sometimes it is hard because I don’t always get candy or sugary treats whenever I want like my brother does.
-Caitlin, 14 years old
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It is very hard to be diabetic in school
It is very hard to be diabetic in school because when I’m in school and it’s someone’s birthday, I’ve always got to be the one that’s left out. That’s been going on since elementary school.
-Andre, 18 years old
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Frustrating changes
I hate getting my fingers pricked and I hate being late for school all the time.
-Stephanie, 10 years old
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Oh yeah, you can't have this
I can’t eat as much sweets as normal kids. I can eat them, but I just can’t eat as much. It gets really annoying when like teachers at school are passing out candy and they say, “Oh yeah, you can’t have this. You can have a pencil instead.” It’s like, well, I can have it. I just can’t have as much. It also gets really annoying needing to explain it five million times to every single teacher.
-Julie, 14 years old
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It gets annoying when people stare at me
It gets really annoying when people stare at me, like when I’m in the nurse’s office when they stare at me when I’m doing my blood sugar. It just gets really, really annoying.
-Julie, 14 years old
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Every once in a while, I'll splurge
The hardest is when there is something you see that you really want to eat and you can’t. It will be like every once in a while that I’ll splurge, but I don’t do it a lot. I think that is the hardest thing.
-Alisha, 20 years old
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Problems on a small level
I don’t think diabetes has ever gotten in the way of any major activity I wanted to participate in, though it does sometimes cause problems on a small level. For instance, it has happened several times that I was asked spontaneously to stay for a meal or overnight and couldn’t because I didn’t have my medication with me.
-Sarah, 23 years old
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The hardest part is the first few years
I think the hardest part for any diabetic is the first few years. Once you are diagnosed it becomes really important to pay attention to everything your body tells you. At first it is such a new thing that I found great difficulty in interpreting what my body tells me. After fifteen years, it’s second nature to me.
-Mary, 25 years old
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Sometimes my diabetes gets in the way of chocolate cake
Sometimes my diabetes gets in the way of chocolate cake, which can be upsetting. Aside from that, I have never had an experience where I’ve been kept from doing anything I wanted to including going back to school for a graduate degree and traveling the world!
-Mary, 25 years old
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