Helpful Links and Resources

http://www.ninds.nih.gov/disorders/cerebral_palsy/cerebral_palsy.htm The National Institute of Neurological Disorders and Stroke site on cerebral palsy.  It provides information and gives links to studies recruiting patients with cerebral palsy.  It also lists organizations for cerebral palsy.

http://www.ucp.org/ United Cerebral Palsy. 

http://www.cerebralpalsy.org/  Provides useful information on resources available by state and support groups.

http://www.hemikids.org/ Online (email) support group for children with hemiplegic cerebral palsy.

http://www.chasa.org/ Online support for children with hemiplegic cerebral palsy, hemiplegia, infant stroke or childhood stroke.

http://www.aacpdm.org/index?service=page/Home American Academy for Cerebral Palsy and Developmental Medicine (AACPDM)

http://www.cerebralpalsysource.com/About_CP/index.html Facts about Cerebral Palsy along with a list of resources.

http://www.cpparent.org CPParent Resource Center. An online support group for parents, caregivers, and others who work with children with cerebral palsy. 

http://www.kidshealth.org/kid/health_problems/brain/cerebral_palsy.html  An interactive site about living with cerebral palsy for kids.

www.fcsn.org: Federation for Children with Special Needs.  Information and referral services on issues concerning parenting, child, and family health and special education.

http://www.familyvillage.wisc.edu/index.html Family Village: A global village of disability-related resources.

http://www.communityinclusion.org Institute for Community Inclusion (ICI).  ICI offers training, and provides assistance to organizations to promote inclusion of people with disabilities in school, work, and community activities.

http://www.easterseals.com National Easter Seals Society.  Provides useful information on available resources for children and adults with disabilities.

http://www.bostoncil.org The Boston Center for Independent Living Inc. (BCIL). A non-profit organization that provides services to people with disabilities, including peer support, skills training, and PCA services in order to enhance the independence of individuals with disabilities.

Books

Lemon The Duck by Laura Backman:  A picture book based on the true story of Lemon, a Pekin duck with a disability who was born in an elementary school classroom.  Children in the classroom work together to help Lemon thrive, and come to understand that Lemon’s difference does not make her any less special (reading level 4-8 years).

I Raise My Eyes to Say Yes by Ruth Sienkiewicz-Mercer and Steven B. Kaplan: The autobiography of Ruth Sienkiewicz-Mercer, a woman with cerebral palsy who communicated through eye movements and facial expressions.

Yoga for the Special Child: A Therapeutic Approach for Infants and Children with Down Syndrome, Cerebral Palsy, and Learning Disabilities by Sonia Sumar: Provides a yoga program designed to increase cognitive and motor skills in children with learning and developmental disabilities.