The Cerebral Palsy Experience Journal is a collection of stories, pictures, and personal experiences from families about what it has been like to contend with pediatric cerebral palsy.  It represents the “collective wisdom” of families and health care providers. A group of parents and health care providers has reviewed all of these contributions for appropriateness.

The Experience Journal was created by Children's Hospital Boston. We welcome family members to enter and explore the Cerebral Palsy Experience Journal. The journal has the following chapters:

	Family Contributions:
	My child The first signs Getting the diagnosis After the diagnosis Sources of support Working with clinicians Cerebral palsy and family Cerebral palsy and school Cerebral palsy and sports Siblings	Surgery Communication Answering questions Bullying Coping with stress Helping your child cope with cerebral palsy Challenges Rewards Looking back: What would have helped? Words of wisdom
	Child, Adolescent and Young Adult Contributions:
	My cerebral palsy Coming into the hospital Surgery Coping with cerebral palsy Answering questions Bullying Cerebral Palsy and family	Cerebral Palsy and school Cerebral Palsy and friends Challenges Rewards My goals and accomplishments Brothers & sisters share their experiences Words of wisdom
	Video Interviews
	Clinician Contributions:
	What is cerebral palsy? How we try to help families Treatments and interventions The pre/post-operative period Working with parents Rewards Challenges	Resources Advice for parents Helpful Links and Resources Alleviating Anxiety in a Pediatric Setting (or The Bunny), by Carol Nolan, RN, BSN and Muriel Corbett, RN, CPN, MS, CCLS Kevin's Story, by Carol Nolan, RN, BSN

We know that there may be some emotional discomfort associated with reading the stories of children and parent describing their experiences dealing with cerebral palsy and the associated issues. Nonetheless, we hope that families learn from the stories of other families facing similar experiences. The goal of the Cerebral Palsy Experience Journal is to facilitate the strength and resiliency that lies in every child and family facing adversity

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