HOW TO SHARE YOUR STORY
At Children's Hospital Boston, we have developed the Experience Journal website, which is designed to help children and their families who are confronted with a medical or emotional condition. The website takes the experiences of children and parents and makes these experiences available via computer access to families who may be facing similar issues. The website is owned and controlled by Children's Hospital.
The Experience Journal works by accepting descriptions from families about what it has been like to live and cope with a medical or emotional illness (ranging from short written explanations of an experience to pictures, poems, stories, or even movies). The website organizes these contributions in a way that makes it easy for families to access information that might be of interest to them, and may add graphics, music and particular formats. A hospital committee of parents and health care providers reviews and edits all contributions for appropriateness prior to including them in the Experience Journal.
If you would like to contribute to the Experience Journal, you may contact us through one of two ways:
Experience Journal Contributions
Attention: David R DeMaso, MD
Hunnewell 121
Children's Hospital Boston
300 Longwood Avenue
Boston, Massachusetts 02115
When we receive your email or letter, we will provide you with information about how to contribute your story or experience. Please indicate whether you would like to receive this information via e-mail or paper mail. If the latter, please be sure to include your mailing address.
If you have any questions about contributing, please contact us at ej@tch.harvard.edu. Thank you for your interest in telling your story for the Experience Journal.
David R. DeMaso, M.D., Editor
Joseph Gonzalez-Heydrich, M.D., Associate Editor