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Tetrology of Fallot - 1) overriding aorta, 2)
right ventricular hypertrophy3) Ventricular septal defect (VSD)
4) pulmonary stenosis (in my son's case Pulmonary atresia absent
pulmonary artery). It was my first project as a second year medical
student in Pathology.
Never in my wildest dreams would my own child
be born with this condition. Of course my wife and I tried to be
careful, we had chromosone checked, two fetal Level two ultrasounds
at another hospital (no one suggested a fetal echo), and because
my wife was a gestational diabetic, she took her insulin and checked
her blood sugars 4 times a day. The only concern was that his feet
were small compared to the rest of his body.
The first surpass at 37 weeks gestation was that
there was no more amniotic fluid so that my wife needed a c-section.
My son was "born" kicking and crying birth weight only
5 lbs. My colleague was at the delivery and said that everything
looked fine, except for he was a "peanut" and his apgars
were 7 and 9. (I thought that he did look kind of blue, but what
did I know, I was only the father.)
At 8 am the next morning, my colleague came into
our room and suggested that my son had a heart problem, since his
oxygenation was low. It really was only 20%, normally it should
be 95-100%.
Anyway here I am at Children's hospital, two
weeks after his successful surgery. He already has had three chest
tubes, and as I am writing this they believe that his v-tach today
was due to dig toxicity. I know way too much.
Good luck to everybody. I hope I have gained
some sensitivity for my patients in my general Pediatric practice.
Thanks for allowing me to share my thoughts. When my son is old
enough to type, I hope he can add to this experience.
 
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