American
Heart Association
Easy to read medical information and pictures on congenital heart
defects and children.
Baby
Hearts Press
We provide books and information for parents, teens, children,
nurses, doctors, social workers and other medical caregivers in
language that is easy to understand and read.
Center for Families, Children's Hospital Boston
The Center for Families at Children's Hospital Boston is dedicated
to helping families find the information and resources they need
to understand their child's medical condition and take part in
their care.
Children's
Health Information Network
Provides medical information, support groups and internet links
for families of children with heart conditions.
Congenital
Heart Defects.Com
This site is devoted to providing information to members of the
world-wide congenital heart defect (CHD) community.
Family
Village
A global community integrating information, resources, and communication
opportunities for the chronically ill and their families.
Heart
and Coeur
This international website provides a large collection of sources
of information and support for individuals and families facing
congenital heart disease, and also contains a congenital heart
disease and cardiology forum.
Kids
with Heart
Providing support, education, and information for families of
children and adults with congenital heart defects and acquired
heart disease.
Little
Hearts
A support network for parents of children with congenital heart
defects.
Massachusetts
Family TIES (Together in Enhancing Support)
Statewide, up-to-date information on services, supports and personal
experiences from early intervention through the transition into
adult services.
MUMS
National Parent to Parent Network
A national Parent-to-Parent organization that provides support
to parents in the form of a networking system that matches them
with other parents whose children have the same or similar condition.
The
National Information Center for Children and Youth with Disabilites
A national information and referral center that provides information
on children and youth with disabilities.
PediHeart
Check out the Kidzone and Parent's Place to learn about the heart,
ask questions and meet other families.
