The Cardiac Experience Journal is designed to promote the healthy coping of children and their families who must contend with significant pediatric heart disease. The Experience Journal is a collection of stories, pictures, and personal experiences from families about what it has been like to live with their children's heart disease. It represents the “collective wisdom” of these children and their parents as well as their health care providers.

We welcome family members to enter and explore the Experience Journal. The Experience Journal has the following chapters:

	Family Contributions:
	Dealing with Operations Living with an Ill Child Words of Wisdom Down’s Syndrome & Heart Problems
	Child, Adolescent & Young Adult Contributions:
	Before the Operation In the Hospital After the Operation Heart Patches: A Story to Help Children Prepare for Cardiac Surgery. (3MB pdf)
	Family Interview
	Video clips and other responses from an interview with two parents whose son, Jake, was born with hypoplastic left heart syndrome.
	Clinician Contributions:
	A Journey Through Children's Hospital Boston Helping Your Child With Medical Experiences Pediatric Heart Transplantation	Getting an EKG or Echo The Clinician's at Children's Hospital Speak Child Health A to Z Useful Links