Jane
Newburger, MD, Associate Cardiologist-in-Chief at Children's
Hospital Boston offered the following responses:
How much do you think kids need to know
about an operation or a catheterization?
The amount of information about an operation
or catheterization that should be given to children depends upon
their age, their ability to understand an explanation, and their
desire to know specific details.
Almost all kids, no matter how old,
should have some understanding of what will happen before, during,
and after a procedure. All kids need to be reassured that they
will be safe.
All kids should be told that they
should talk to the nurses and doctors present at the procedure
if they are afraid, confused, upset, in pain, etc.
All kids need to know when they will
be able to see their parents or family members, which is usually
as soon as possible after the procedure is complete.
I always ask parents privately to what extent
they would like their children included in serious discussions.
I almost never discuss serious risks (like death, stroke, etc.)
when the child is present.
I'm quite sure that some medical personnel
(usually physicians) are so focused on discussing risks and benefits
and obtaining an informed consent that they are insensitive to
the effect such a discussion can have on the child if he/she is
in the room. For my own patients, I recommend that the parents
tell the triage nurse in the pre-catheterization or pre-surgical
area about their preference regarding their child's presence during
informed consent.
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