Pediatric Heart Transplantation:
A Practical Parent Guide

PART 11: TIME TABLE: HEART FAILURE/TRANSPLANT

Time Table: Heart Failure/Transplant	Approx. Time
1. Initial Consultation Meeting the Transplant Team	1-3 Days
2. Heart Failure Evaluation and Testing Testing ordered and completed Pre-Transplant Education	7-10 Days
3. Transplantation Listing	1-3 Days
4. Wait Time	Average 2 – 3 months; can be as long as 1 year
5. Transplantation	4 – 6 hours in the Operating Room
6. Hospitalization after Transplant	2 – 6 weeks
7. Post Discharge Follow Up – Weeks 1 - 4	2 appointments per week
8. Post Transplant Follow Up – Weeks 5 - 8 ***Note if patient lives more than a 2 hour drive from the hospital, the family will need to stay locally for 6-8 weeks after discharge***	1 appointment per week
9. Post Transplant Follow Up – Weeks 9 - 12	1 appointment every other week
10. Post Transplant Follow Up – Months 3 - 6	Monthly Clinic Appointments
11. Post Transplant Follow Up – Months 6 - 12	Clinic Appointments every 2 – 3 months
12. Post transplant Follow Up – 1 Year +	Clinic every 3 months; cardiac catheterizations with biopsies every six months; annual “full” cardiac catheterization

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