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“Where to Begin? Information, Guidance and Support for Families Facing End of Life Decisions” -The Center for Families, Children's Hospital, Boston
School Bereavement Packet - PACT Team. Children's Hospital, Boston
“All About Me”: Sibling Bereavement Packet - Child Life Department, Children's Hospital, Boston
HELPFUL LINKS:
Hoping Skills Company
www.hopingskills.org
A company started by a bereaved mom and child life specialist. This website offers a link to all kinds of resources for bereaved families.
Ethan’s House
http://www.geocities.com/ethanshouse
Allie Zelinski, a chat room host for the AOL forum Moms Online, provides this small site for bereaved parents who have suffered the loss of children or infants. Site accepts original poetry submissions from visitors and post memorials. This site includes a Dad’s Network area, one of the few sites on the net to explicitly acknowledge men’s grief.
The Sibling Support Project
http://www.siblingsupport.org
The Sibling Support Project is a site for the siblings of people who have special health, developmental, or mental health concerns. It provides information, links to resources, as well as listservs for adult and child siblings.
The Dougy Center for Grieving Children & Families
http://www.grievingchild.org
Website for the Dougy Center, a nationally renowned center for work with grieving children and teens. It has information for adults to help young people, as well as information and activities for children and teens to help understand their grief. Information is also provided to assist with the grief experienced if someone at the child’s school dies.
Grief Net
www.griefnet.org: Large site for both adults and children. It specializes in “email support groups” where peers provide support, while also being monitored by trained therapists and a licensed psychiatrist. Site for children (http://www.kidsaid.com) also includes support for typical childhood/adolescent issues (i.e. peer pressure, dating, family relationships, etc.).
Centering Corporation and Grief Digest Magazine
http://www.centering.org
Offers a comprehensive book and resource list to families, caregivers, and medical staff.
The Compassionate Friends
http://www.compassionatefriends.org
National organization that offers monthly support groups in your area along with quarterly newsletters and pamphlets. Contact the national office to find the chapter in your area.
The Candlelighters Childhood Cancer Foundation
http://www.candlelighters.org
International peer support group for parents of children who have or have had cancer.
Social Work Therapy Referral Service: Free confidential telephone referral service servicing most towns in MA. Helps you to find a skilled individual family or group therapist.
14 Beacon Street
Boston, MA 02108
(800) 242-9794
http://www.therapymatcher.org
Massachusetts Commission on End of Life Care: Provides a comprehensive resource guide with listings by region: http://www.endoflifecommission.org
National Hospice Contact:
http://www.nho.org
Children’s Hospice International:
http://www.chionline.org
New England Hospice Contacts:
- Massachusetts: The Hospice Federation of MA: (781) 255-7077
http://www.hospicefed.org
- Rhode Island: Home & Hospice Care of RI: (401) 727-7070
- Connecticut: Hospice Council of CT: (203) 238-1922
- New Hampshire: NH Hospice & Palliative Care Organization:
(603) 225-0900
- Maine: Maine Hospice Council: (207) 626-0651 http://www.mainehospicecouncil.org
- Vermont: Hospice Council of Vermont: (802) 229-0579
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